Broadly Engaged Team Science in Clinical and Translational Research

Despite the large U.S. investment in health science, and the vast and growing body of peer-reviewed research findings it has produced, a compelling body of evidence suggests that research too often has been slow, inefficient, and fallen short of desired impacts on health. A key question is how resea...

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Detalles Bibliográficos
Autor Corporativo: SpringerLink (-)
Otros Autores: Lerner, Debra, editor (editor), Palm, Marisha E, editor, Concannon, Thomas W, editor
Formato: Libro electrónico
Idioma:Inglés
Publicado: Cham : Springer International Publishing 2022.
Edición:1st ed
Colección:Springer eBooks.
Acceso en línea:Conectar con la versión electrónica
Ver en Universidad de Navarra:https://innopac.unav.es/record=b47151092*spi
Tabla de Contenidos:
  • 1. Introduction
  • Part I Transforming Research with Broad Engagement
  • 2. The Transformative Power of Broadly Engaged Team Science: A Moth-er's Quest to Understand PXE
  • 3. Broadly Engaged Team Science in Neonatal Research
  • 4. Patient Advocates in Cancer Care: A Rich Tradition and Evolving Role
  • 5. National Kidney Foundation Patient Network
  • 6. Broadly Engaged Team Science Comes to Life in a Design Lab
  • 7. Tufts Center for the Study of Drug Development Employs Broadly Engaged Team Science to Explore the Challenges of Pharmaceutical Research and Development
  • Part II. Integrating Communities and Stakeholders into Broadly Engaged Team Science
  • 8. Social Movements and Stakeholder Engagement
  • 9. A Basic Scientist's Journey: Engaging Public Stakeholders Through Civic Science
  • 10. Lessons in Public Involvement from Across the Pond
  • 11. Leveling the Playing Field for Community Stakeholders: Examining Practices to Improve Engagement and Address Power Dynamics
  • 12. A Theory of Stakeholder-driven Community Diffusion
  • 13. Monitoring and Evaluation of Stakeholder Engagement in Health Research
  • Part III. Applying Broadly Engaged Team Science: Case Studies
  • 14. Insiders and Outsiders: A Case Study of Fostering Research Partnerships between Academic Health Centers and Corrections Institutions
  • 15. Responding to the Community: HOPE (Healthy Outcomes from Positive Experiences)
  • 16. Students as Key Collaborators in Tackling Early Stage Research Ideas
  • 17. Engaging Stakeholders to Decrease Study Start-up Delays
  • 18. Health Literacy and Broadly Engaged Team Science: How One Study Team Used Plain Language Principles to Share Findings with Affected Communities
  • 19. Utilizing Patient Navigators to Promote Equitable and Accountable Research
  • 20. Asian American Research in the Post-Atlanta Era: Driving Community-engaged Research That Is More Meaningful, Responsive, and Actionable for Local Communities
  • 21. Stakeholder Engagement in Predictive Model Development for Clinical Decision Support
  • Part IV. Creating an Institutional Environment of Support for Broadly Engaged Team Science
  • 22. Research Administration Practices for Proposal Development and Post-Award Management of Stakeholders and Community Participants
  • 23. Starting Off Right: Supporting Community Involvement in the Evaluation of Research Proposals
  • 24. Role of Broadly Engaged Team Science in the Inclusion of Minority Populations as Research Participants and in All Roles on Research Teams
  • 25. Rewarding Team Science in Tenure and Promotion Practices: An Operational Imperative for the Academic Research Enterprise of the 21st Century
  • Epilogue.