Genetic privacy an evaluation of the ethical and legal landscape

Privacy is an unwieldy concept that has eluded an essentialised definition despite its centrality and importance in the body of bioethics. The compilation presented in this volume represents continuing discussions on the theme of privacy in the context of genetic information. It is intended to prese...

Descripción completa

Detalles Bibliográficos
Otros Autores: Kaan, Terry (-), Ho, Calvin Wai-Loon
Formato: Libro electrónico
Idioma:Inglés
Publicado: London : Imperial College Press 2013.
Colección:EBSCO Academic eBook Collection Complete.
Acceso en línea:Conectar con la versión electrónica
Ver en Universidad de Navarra:https://innopac.unav.es/record=b30783392*spi
Tabla de Contenidos:
  • The notion of genetic privacy / Calvin W.L. Ho and Terry S.H. Kaan
  • Can data protection secure personal privacy? / Onora O'Neill
  • Navigating the privacy complex of self, other, and relationality / Calvin W.L. Ho
  • Privacy and biomedical research : a role-based approach / Anh Tuan Nuyen
  • Socio-political discourses on genetic privacy in Japan / Kenji Matsui
  • Genetic privacy : a challenge to genetic testing in China / Chunshui Wang
  • Don't ask, don't tell : exploring the limits of genetic privacy in Singapore / Terry S.H. Kaan
  • Privacy, rights, and biomedical data collections / Benjamin Capps
  • Individual right vs. public interest : the role of the Islamic religious council of Singapore in bioethics consultation on genetic privacy / Nazirudin M. Nasir
  • What
  • if anything
  • is special about "genetic privacy"? / Jacqueline J.L. Chin and Alastair V. Campbell
  • Genetic privacy in the United States : genetic exceptionalism, GINA, and the future of genetic testing / Thomas H. Murray and Ross S. White
  • The regulatory framework for protection of genetic privacy in Australia / Margaret Otlowski and Dianne Nicol
  • Privacy matters in nicotine addiction / Yvette van der Eijk
  • Human genomics and privacy / Oi Lian Kon.