When children die improving palliative and end-of-life care for children and their families

Detalles Bibliográficos
Autor Corporativo: Institute of Medicine (U.S.). Committee on Palliative and End-of-Life Care for Children and Their Families (-)
Otros Autores: Field, Marilyn J. (Marilyn Jane) (-), Behrman, Richard E., 1931-
Formato: Libro electrónico
Idioma:Inglés
Publicado: Washington, D.C. : National Academy Press c2003.
Edición:1st ed
Materias:
Ver en Biblioteca Universitat Ramon Llull:https://discovery.url.edu/permalink/34CSUC_URL/1im36ta/alma991009820295906719
Tabla de Contenidos:
  • ""Front Matter""; ""Contents""; ""Preface""; ""Acknowledgments""; ""Reviewers""; ""Summary""; ""Introduction""; ""Patterns of Childhood Death in America""; ""Pathways to a Childâ€?s Death""; ""Communication, Goal Setting, and Care Planning""; ""Care and Caring from Diagnosis Through Death and Bereavement""; ""Providing, Organizing, and Improving Care""; ""Financing of Palliative and End-of-Life Care for Children and Their Families""; ""Ethical and Legal Issues""; ""Educating Health Care Professionals""; ""Directions for Research""; ""References""; ""Appendix A Study Origins and Activities""
  • ""Appendix B Prognostication Scores""""Appendix C Assessing Health-Related Quality of Life in End-of-Life Care for Children and Adolescents""; ""Appendix D Cultural Dimensions of Care at Lifeâ€?s End for Children and Their Families""; ""Appendix E Bereavement Experiences after the Death of a Child""; ""Appendix F End-of-Life Care in Emergency Medical Services for Children""; ""Appendix G Education in Pediatric Palliative Care""; ""Appendix H Progress in Pediatric Palliative Care in New York Stateâ€?A Demonstration Project""; ""Appendix I Committee Biographical Statements""; ""Index""